Palliative Care

Palliative Care Resources

General resources above & healthcare provider resources below

For yourself or for your patient/caregiver:

GetPalliativeCare.org for family caregivers – caregiver targeted videos, stories and advice from those who share the same role

The Conversation Project – tools for patients and caregivers just starting to consider end of life wishes – best used before sitting down to discuss advance directives

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For healthcare providers:

Palliative Care Quick Reference This is the two sided handout I share with students on day one with our team.  Sample language, resources, calculators, hospice myths, and a six step process for the basic palliative skill every type of healthcare provider needs.

GetPalliativeCare.org for clinicians – tools and resources for explaining Palliative Care to other health care providers

Fast Facts listing from PCNOW  great quick evidence based topics by the Palliative Care Network of Wisconsin

Center to Advance Palliative Care / CAPC

Your employer may have a membership for online training, or explore excellent resources for non-members – start by searching ‘press kit’

ElderCare Locator  search the website or call 1-800-677-1116 for live assistance

NeedyMeds.org find help with the cost of medicine

Opioid Conversion – Concepts, frequently used meds, conversions and practice tests

Charting Guides

Advance Care Planning documentation requirements see #6

Medicare E&M Documentation reference guide

Clinical Scales

25 Evaluation Tools/Scales from NPCRC.org

FAST scale for Alzheimer’s Dementia

PPS Palliative Performance Scale

ESAS Edmonton Symptom Assessment Scale

Karnofsky and ECOG Scales

Heart Failure NYHA Class I-IV and A-D staging

Renal Failure CKD Stages

Creatinine Clearance Calculator

Cancer Staging 

Helpful apps & books for community based palliative care providers

Explore here and find through your phone’s App Store or Google Play

Epocrates for Android          Epocrates for iPhone

Cost: Free for drug reference, paid version is for clinical/disease reference

Opioid Calc MME 

Cost: Free. Enter in daily totals of each type of opioid to aid in calculating total daily morphine equivalent and converting between medications

Doximity Dialer

Cost: Free. Create a free Doximity account for physicians, NPs, PAs and this app allows you to dial from your cell phone and have the number of your choice (such as your office number) appear on the incoming CallerID.  Supports multiple office numbers.

Lab Tests Online 

Cost: Free. Website reference with free app for description of and reference ranges of laboratory studies.

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Primer of Palliative Care, 6th Edition

Very useful reference, easy to use within the visit.  Pricey at the AAHPM website but can find used online for under twenty dollars. Excellent quick reference – also has good content on illness trajectories, discussing prognosis, etc.

Demystifying Opioid Conversion Calculations: A Guide for Effective Dosing, Mary Lynn McPherson

Excellent book on selecting and converting opioids including calculating breakthrough dosing.

Review books for the ACHPN certification exam

Hospice & Palliative Nursing Association site for attaining/maintaining certification

Being Mortal, Atul Gawande – required reading for clinicians, also good for patients and families.